Reaching a plateau – what now?

Up until recently I have felt that I have been making slow, steady improvements in how much I can do before triggering a fatigue ‘crash’ or a severe migraine. I’ve been able to push the distance I can walk, how far I can drive, how much time I can spend being a parent / wife…

Chronic illness and extreme stress: not great bedfellows

It’s not exactly rocket science to know that stress has an impact on health, even more so when there is an underlying illness. And buying / selling houses, is pretty stressful as it turns out. At least it seems to be for us. This is our second attempt at moving house. The last one started…

Being grateful for the little things

One of the hardest things about being a parent with a chronic illness is the guilt you constantly feel. Guilt for not being present enough, for missing moments big and small, for never feeling quite ‘enough’. As someone who has developed this illness relatively recently, I also have a clear ‘before and after’ picture in…

The ups and downs of a chronic illness

I have been ill for two and a half years now. Not that long, in chronic illness terms. There are people who have been battling for decades. But long enough that I probably should have learnt by now that this illness fluctuates. There are times when I feel relatively normal and start thinking that maybe…

A simple question. A complicated answer

How are you? Such a simple question. But when you have a chronic illness, the answer can be pretty complicated. The standard answer, for us stoic Brits at least, is ‘fine thanks. You?’ Or maybe ‘oh god I’m so tired’ – everyone is tired, so no one bats an eye at that. They usually agree…

The Mind-Body connection – an alternative way to control pain?

Four weeks on from an operation on my sinuses which had the potential to cure the constant migraines I have developed and I have to admit it was a failure. The migraines continue. Actually I should probably just say ‘migraine’ as it just one never ending one as far as I can tell (in medical…

ME Awareness Week 2019

ME Awareness Week 2019 runs from 6th -12th May, with the goal being to improve the general public’s understanding of this often misunderstood illness. The ME Association is sharing stories from many of the ‘millions missing’, a term used to describe the many people out there who suffer from this illness and who have pretty…