Finding my new normal

I have spent the last few years dealing with chronic illness and my life has changed almost beyond recognition. I have started this blog to help make some sense of what has happened and where I am now, to try and move beyond survival mode and try to figure out a way to thrive, within…

A simple question. A complicated answer

How are you? Such a simple question. But when you have a chronic illness, the answer can be pretty complicated. The standard answer, for us stoic Brits at least, is ‘fine thanks. You?’ Or maybe ‘oh god I’m so tired’ – everyone is tired, so no one bats an eye at that. They usually agree…

The Mind-Body connection – an alternative way to control pain?

Four weeks on from an operation on my sinuses which had the potential to cure the constant migraines I have developed and I have to admit it was a failure. The migraines continue. Actually I should probably just say ‘migraine’ as it just one never ending one as far as I can tell (in medical…

ME Awareness Week 2019

ME Awareness Week 2019 runs from 6th -12th May, with the goal being to improve the general public’s understanding of this often misunderstood illness. The ME Association is sharing stories from many of the ‘millions missing’, a term used to describe the many people out there who suffer from this illness and who have pretty…

The anniversary effect

It is common for anniversaries to bring up alot of emotion, both good and bad. For happy occasions like weddings it’s a chance to look back and remember a wonderful day (assuming it was 😁) and to take a bit of time out to celebrate the years of marriage since. For the loss of a…

Keeping positive in my new normal

Keeping positive when you have a chronic illness can be a battle in itself. It’s no surprise that one of the most common symptoms of chronic illness is depression, either as part of the overall illness, or as a ‘side effect’. For many people, your life completely changes and that is a massive challenge to…

Any improvement is good improvement

Sometimes it’s hard to tell if I really am improving, in terms of my symptoms and how they affect me. On a day to day basis I struggle, always, with pain, migraines and fatigue, so it can be hard to remind myself that I am still on that journey, and technically it is going in…