Finding my new normal

I have spent the last few years dealing with chronic illness and my life has changed almost beyond recognition. I have started this blog to help make some sense of what has happened and where I am now, to try and move beyond survival mode and try to figure out a way to thrive, within…

Long Covid – could we finally start to understand what causes ME?

A few months into the pandemic, trickles of reports started to surface about people who has been ill with Covid-19 and not quite recovered. These people often had a mild form of the illness and hadn’t required hospitalization but weeks and months later, they were still experiencing a multitude of symptoms that had no simple…

Botox: round two – hospitals and COVID

I posted back in March that I had finally been offered botox as a treatment for my chronic intractable migraine, after trying about a gazillion other medications. The usual protocol is to repeat the treatment every three months and it is usually only after the second or third treatment that a significant impact is seen…

Balancing family, work and health in this ‘new normal’

Before the world went into lockdown and working from home became the norm (for those of us who can), I used to WFH 2-3 days a week in order to help manage my fatigue/migraines. This combination of office and home worked well – lots of meetings and face to face conversations when in the office,…

ME Awareness Day 2020

As it is ME Awareness Day, a fact which had pretty much passed me by since, ironically, I am currently in the middle of a fatigue ‘crash’, I thought I would do a quick post about this crappy illness. ME (Myalgic Encephalomyelitis), more commonly known as Chronic Fatigue Syndrome (CFS), affects millions of people around…

Social distancing: day four (where alcohol is bloody helping)

Things are still pretty…abnormal. In the past few days we have gone from being advised to work from home if possible, to being told all schools are closing, to all social areas like pubs, restaurants, gyms etc. being told to close, effective immediately. I’m not completely sure if these more extreme measures were all part…

COVID-19 and chronic illness

Well, this is a weird time isn’t it? I have to admit, when the news of a new virus spreading in China first started trickling out I flashed back to all the post apocalyptic literature I’ve read over the years (The Stand and Station Eleven are two excellent examples I’ve read recently) and I wondered…

Update: botox experience

I posted earlier about the fact I had been offered a last minute appointment for botox, which was the next step in attempting to manage the chronic migraine I have had for over a year. I’m just back and have a few updates: Having a needle inject toxin into your face and neck 31 times…