Finding my new normal

I have spent the last few years dealing with chronic illness and my life has changed almost beyond recognition. I have started this blog to help make some sense of what has happened and where I am now, to try and move beyond survival mode and try to figure out a way to thrive, within…

Chronic illness and extreme stress: not great bedfellows

It’s not exactly rocket science to know that stress has an impact on health, even more so when there is an underlying illness. And buying / selling houses, is pretty stressful as it turns out. At least it seems to be for us. This is our second attempt at moving house. The last one started…

Being grateful for the little things

One of the hardest things about being a parent with a chronic illness is the guilt you constantly feel. Guilt for not being present enough, for missing moments big and small, for never feeling quite ‘enough’. As someone who has developed this illness relatively recently, I also have a clear ‘before and after’ picture in…

The ups and downs of a chronic illness

I have been ill for two and a half years now. Not that long, in chronic illness terms. There are people who have been battling for decades. But long enough that I probably should have learnt by now that this illness fluctuates. There are times when I feel relatively normal and start thinking that maybe…

A simple question. A complicated answer

How are you? Such a simple question. But when you have a chronic illness, the answer can be pretty complicated. The standard answer, for us stoic Brits at least, is ‘fine thanks. You?’ Or maybe ‘oh god I’m so tired’ – everyone is tired, so no one bats an eye at that. They usually agree…

The Mind-Body connection – an alternative way to control pain?

Four weeks on from an operation on my sinuses which had the potential to cure the constant migraines I have developed and I have to admit it was a failure. The migraines continue. Actually I should probably just say ‘migraine’ as it just one never ending one as far as I can tell (in medical…

ME Awareness Week 2019

ME Awareness Week 2019 runs from 6th -12th May, with the goal being to improve the general public’s understanding of this often misunderstood illness. The ME Association is sharing stories from many of the ‘millions missing’, a term used to describe the many people out there who suffer from this illness and who have pretty…

The anniversary effect

It is common for anniversaries to bring up alot of emotion, both good and bad. For happy occasions like weddings it’s a chance to look back and remember a wonderful day (assuming it was 😁) and to take a bit of time out to celebrate the years of marriage since. For the loss of a…