Four weeks on from an operation on my sinuses which had the potential to cure the constant migraines I have developed and I have to admit it was a failure. The migraines continue. Actually I should probably just say ‘migraine’ as it just one never ending one as far as I can tell (in medical…

ME Awareness Week 2019 runs from 6th -12th May, with the goal being to improve the general public’s understanding of this often misunderstood illness. The ME Association is sharing stories from many of the ‘millions missing’, a term used to describe the many people out there who suffer from this illness and who have pretty…

It is common for anniversaries to bring up alot of emotion, both good and bad. For happy occasions like weddings it’s a chance to look back and remember a wonderful day (assuming it was 😁) and to take a bit of time out to celebrate the years of marriage since. For the loss of a…

Keeping positive when you have a chronic illness can be a battle in itself. It’s no surprise that one of the most common symptoms of chronic illness is depression, either as part of the overall illness, or as a ‘side effect’. For many people, your life completely changes and that is a massive challenge to…

In December 2018 I had been ill for about 19 months, but was starting to feel like I was really getting on top of things. I’d been eating paleo for 3 months and it seemed to be helping, my activity levels were increasing and I had barely had a sick day since my last big…

Sometimes it’s hard to tell if I really am improving, in terms of my symptoms and how they affect me. On a day to day basis I struggle, always, with pain, migraines and fatigue, so it can be hard to remind myself that I am still on that journey, and technically it is going in…

I could probably write a very long list of things I have been disappointed to miss out on over the last few years, and many of them will be much more important in the grand scheme of things – trips with the kids I have missed out on, date nights with my husband I have…

No one really knows what causes ME/CFS to develop (many people find that it follows a bacterial or viral infection, for others it can follow a physical or mental trauma, in other cases there is no obvious ‘trigger’), and the physiological cause for the symptoms are also up for debate. There is alot of talk…

Disney World, Florida. The happiest place on earth. OK, this is an advertising slogan rather than a hard fact, but I think for many of the 52 million people a year who visit, it is probably true. I was lucky enough to visit Disney World several times as a teenager and with family living in…

Sometimes having an invisible illness is a great thing (well, obviously the illness isn’t great. Just the invisible part). I can get on with my day without having people wonder what is wrong with me, or asking personal questions. It can also be tricky, though, in situations where I would really benefit from having an…